Today is DAY +18 and yesterday was +17. For updated blood counts, please CLICK HERE.
I took a little break from the laptop yesterday, but we have awesome news! Kevin was released from BMT outpatient yesterday and has graduated to the BMT Clinic / Home Care. His counts indicate that his donor cells are engrafting nicely and that means that his new bone marrow is producing white blood cells, red blood cells and platelets on its own. The only main concern at this point is his Tacrolimus (tacro) level was high when he was discharged. This worries me because it is something that could cause liver and kidney damage. Tacrolimus is an immunosuppressive medicine that is used in an allogeneic bone marrow transplant to prevent rejection and severe Graft Versus Host Disease (GVHD). Because Kevin’s donor was a 7/8 mismatch, this is especially important. Kevin’s tacro dosage had to be adjusted frequently over the past month and the only way to know the level is with a blood test.
Tomorrow is the first appointment in Clinic, so we will find out what his tacro levels are and we will also find out the gist of the new routine. I say the “gist” because like I’ve said throughout this entire journey, plans are made, but plans frequently change. We should also learn when they will do Kevin’s first PCR (Polymerase Chain Reaction) test. This test will indicate if there is any leukemia present in his blood.
Kevin is still feeling very tired and weak. We went for a walk outside today and he did very well. However, it pretty much used every ounce of energy he had. He also noticed that his back and his hips were pretty sore after the walk. Hopefully it isn’t anything too concerning. Good news is NO fevers! =)
Otherwise, the last two days were pretty relaxing. I decided to take a physical and mental break and only do the bare necessities. I have been struggling with headaches the last couple of days, so I know I needed to do that. Kevin is having a little bit of a hard time being so isolated from the world, but he knows how important that is right now. A few months is a small price to pay in the big scheme of things. However, I still acknowledge that it sucks. It really, really, really sucks. But we still have to make the BEST of everything and never let it get the best of us! Thanks for stopping by!