Last week, while we were on our trip to Halifax, Nova Scotia (1500 KM away from home) to bring my son to his University, we received news that my loverman was being referred to one of the top CML (chronic myelogenous leukemia) specialists in Canada at the Princess Margaret Cancer Centre in Toronto, Ontario. The appointment was early this afternoon.
I wish I had better news.
Unfortunately Kevin’s leukemia is not responding to the new TKI chemotherapy and the leukemia is changing to a more aggressive type. They found a second Philadelphia Chromosome in his last bone marrow. I think it’s a ‘double Ph Chromosome’… It’s a rare and unique situation, we have been told. The next step is a transplant and there is no avoiding it. So they are looking for a match and hope to find one ASAP. Our life will change drastically, as we will need to live in another city, Ottawa, Ontario for at least 3 months. It’s not going to be easy and we haven’t exactly figured out how we are going to manage everything, but I have faith that Kevin can get through this with all of the love and support from family and friends. We will stay positive and keep laughing and make the best of it regardless of how tough it is.
Many of you have asked about being tested to be a stem cell/bone marrow donor for Kevin. We would encourage you to get tested only if you would be willing to be a donor for ANYONE, not just for Kevin. Unless the existing lists do not already have a match for Kevin, you wouldn’t be registered in enough time. We will let everyone know if we need to extend the search beyond the registries. However, becoming a donor is an amazing thing for any one of you to do for ANYONE… not just Kevin. Just imagine if you were in this situation right now how grateful you would be. Also, we were encouraged to encourage all of our friends and family to donate blood if you can. SO PLEASE DONATE BLOOD. Again, this is not just for Kevin. It’s to help anyone in need of blood and Kevin may need a lot of it.
We have an appointment at the Kingston cancer clinic first thing in the morning. It’s been an exhausting day emotionally, mentally and physically. Kevin is doing freakin’ awesome considering! This is why I love this man so much. His strength is incredible and that makes it easier to help him get through this.
I will start to update this blog more frequently so we can hopefully help others as others have helped us by sharing their stories. Hopefully we will find out some more information soon. Until then, thank you so much for your thoughts, prayers, love and support! We need it more than ever now!! =) xo