My husband, Kevin Guenter aka “Loverman”, was diagnosed with CML (Chronic Myelogenous Leukemia) on November 17th, 2013.
Long story short – Unfortunately his leukemia was resistant to the TKI Chemotherapy treatment that is normally successful in managing Chronic Meyloid Leukemia. He tried Gleevec (Imatinib) and Tasigna (Nilotinib) and Bosulif (Bosutinib). Although he had a rather quick and satisfactory hematological response, he never reached a cytogenetic response. All of his PCR tests showed that he was still at diagnostic levels (95-100% Ph-positive BCR-ABL).
The last bone marrow biopsy revealed a double Philadelphia Chromosome, which is many cases is a “resistance factor”. The doctor explained that meant the leukemia was unstable and transitioning to the more aggressive phases of CML. We were told that his circumstances are “rare” and “unique”. As a result, he was referred to one of the top CML specialists in Canada, Dr. Lipton, on September 2, 2014. On that day he was informed that his best chance of survival is a Stem Cell / Bone Marrow Transplant.
We decided that Toronto, Ontario was not the best place for Kevin to have his transplant for a number of reason, so we decided to go to Ottawa for the procedure. The Ottawa Bone Marrow/Stem Cell Transplant program is supposed to be one of the best in Canada and it is much easier for our family and friends to support us being in Ottawa.
You can learn more about our journey and keep up-to-date on Our Bloody Awesome Journey Blog.
I started blogging about our “bloody awesome journey” just after Kevin was diagnosed on my Comic Strip Mama Blog. However, I felt like our journey deserves a domain of it’s own.
The purpose of this website/blog is to share our experiences and help others as others have helped us. I also hope to prove to the world that no matter what seemingly insurmountable adversity you are faced with in this life, ATTITUDE is EVERYTHING!! Cancer sucks… oh yes it does!! But it’s really all a matter of perspective. You don’t have to give into the feelings of anger, negativity and self pity. You CAN focus on the positive, recognize the blessings and find the humor despite the pain and insanity. It’s possible. You just need to wake up every single day with the intention of making the best of IT so IT doesn’t get the best of you. Our motto:
Stay focused on the positive, recognize the blessings, find the humor, hope for the best, brace yourself for the worst… and KEEP GOING!
Thanks for stopping by!